What happened in the early hours of Friday, February 3, 2012, is something many parents would not want to remember. Joel Whitmire McClain, who suffered Congenital Disorder of Glycosylation (CDG), lost his battle to pneumonia.  But nearly six years later, his mother and father, Kevin and Brea McClain, do just that.

Since 2013, the McClain’s host the Joel McClain Memorial Blood Drive at Grace Presbyterian Church in February, which not only coincides with the month that Joel died, but also Rare Disease Awareness month.

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